Stay Home Update Week 4 (COVID-19)

What a week it has been, it has been a slight rollercoaster emotionally. ย I've been trying to balance my unquenching thirst to be productive and remembering my body has the energy of a sloth and ME/CFS likes to kick to remind you that you can't get it all done. Ha jokes curl up in a … Continue reading Stay Home Update Week 4 (COVID-19)

Staying Sane, Staying Home

So here we are in week 3 for the UK having being told to stay home. I don't like the terminology around this time "lockdown" and "quarantine" sound so much more worrying than stay at home. I know some people find the vocabulary rather anxiety-inducing and find the general panic quite difficult to deal with. … Continue reading Staying Sane, Staying Home

How I Survive Flying With A Chronic Illness

As you are all probably bored of hearing I recently went abroad on holiday. It meant two flights obviously and as someone who has navigated airports a few times, I would share my tips for preserving yourself and energy. ย I hope this gives you some reassurance that it can be possible to fly - even … Continue reading How I Survive Flying With A Chronic Illness

Conscious Energy Conserving

This is the first blog of 2020! I hope your start of 2020 has been a good one. I took some time off to try and recover from the festive season. I always think the blog world hibernates a little the first two weeks of January so I thought it was a good time to … Continue reading Conscious Energy Conserving

Twas The Night Before Christmas

Well, we've made it to Christmas Eve. Hopefully, it will be time to unwind and be in for a Christmas we can celebrate as best we can. Having been dealing with my own mixed emotions about Christmas it made me think about how most people are going through something even if we aren't aware and … Continue reading Twas The Night Before Christmas

Trying To Get Medical Help That Suits ME/CFS

This is a daunting blog post to write, it makes the situation that much more a reality. I bet your curiosity is piqued. So I have been with the same medical team since I transferred to adult services in the NHS at nineteen. There wasn't a clear path for me to progress from paediatrics so … Continue reading Trying To Get Medical Help That Suits ME/CFS