Readdressing The Balance

I know I'm not the first person to have to readdress the balance of trying to stay well but also be a participant of life. I haven't been getting the balance right recently. Most of it has been out of my control, more doctors appointments meetings and family events and just generally trying to keep … Continue reading Readdressing The Balance

See Me Before M.E

"Don't forget, I'm just a girl, standing in front of a boy, asking him to love her." When I watched Notting Hill for the first time, the quote above didn't really impact me. It started to resonate when I got ill. I wanted to have that moment where I became just a girl looking for … Continue reading See Me Before M.E

Starting Closer To Home

Looking closer to home when you are dreaming from your bed of the far of lands David Attenburgh has described might be the most anti-climatic symbolism you could muster. Home can become your prison, as awful as it sounds. You know each of the four walls of a room intimately to the texture of the … Continue reading Starting Closer To Home

Ambition, Panic and M.E

Do you ever panic that you aren't doing enough with your life? Every September when school starts again I get overwhelmed with the feeling I'm not doing enough and I'm wasting time. When I first came out of education I was taking a gap year to see if I could recover enough to do an … Continue reading Ambition, Panic and M.E

10 Things I Learnt From Disney

Hi I am back from my holiday and back to my usual once a week blog post. I will probably be officially writing up about my holiday in the next few weeks so I won't bore you now but I had an amazing time and I probably overloaded you all with photos on social media. … Continue reading 10 Things I Learnt From Disney

Stuck In The Middle With You

Hello! How is life? I feel like I have so much to catch up on and tell you about my holiday by the sea, in the sunshine. Like the life of M.E/CFS is, it was a mixed bag but a fabulous holiday with my family. I have so many pretty pictures to share and a … Continue reading Stuck In The Middle With You

Will I Ever Get Better?

For most, this is the most troubling of questions we get asked or ask ourselves. Will I ever get better? What is 'better' and 'normal' for me now? You can easily torture yourself with the unanswered questions that you have no idea if they will ever be answered. With my condition, the general consensus is … Continue reading Will I Ever Get Better?

Defining ME

So, my dear friends, it is silly o'clock once again and I'm sat writing this because notes and a title weren't enough. Brain fog can make writing particularly difficult as sometimes I completely forget the point or ending to something between night and the following day. This idea was too good to lose in the … Continue reading Defining ME

Can You See ME? – Day In Life Of Me with ME

I know on here I talk about ME/CFS a lot and the impact it has on the individuals that have it and the wider circle of their friends and family. But today I want to give an honest account of a big events day typical in the life of ME. It's ME Awareness Week and … Continue reading Can You See ME? – Day In Life Of Me with ME

Hiding ME and Me

So It's ME awareness week from the 7th of May to the 13th with ME awareness day being the 12th of May. I have struggled to know where to start with ME awareness which is kind of funny considering I manage to write a blog post about it every week. I'm taking you far into … Continue reading Hiding ME and Me