Finding a sense of purpose amongst chronic illness can be a difficult task but when asks you what you want to do or work towards in life it can feel more than impossible. I live with M.E/CFS and every day can be so different it's hard to plan a week let alone my life long … Continue reading What Do I Want For My Life?
There is a cafe in the city close to where I live that has a split seating area. There is a platform to see the view across the city which is three steps further. It shockingly has a mini lift to make it accessible (Whoo!!) but it's one of those loud whine type (boo) ones … Continue reading Pushing The Envelope
Before we get into today's blog post I just want to say I mean no disrespect to anyone who genuinely tries to be supportive of someone with M.E/CFS, I also know a one-off comment can be a blow to someone that hurts and can stick in their minds. Sometimes no matter how open you are, … Continue reading What To Do When People Don’t Believe You
I am most certainly in the dreaded post-Christmas Slump whilst the rest of the world seems to be full of ambition, energy and vigour in getting life sorted. I hate this time of year as my health is pants there is always a million things going on and pressure lots of pressure. I turn into … Continue reading Wanting To Hibernate
Settling into January after Christmas and New Year can be quite the process. There are the inevitable crashes and the picking up your life once again. I don't know about you but I have lots to get my head around and a lot to organise. Add in the ambitions of looking after oneself and wanting … Continue reading Making Changes In January
I am a homebody by nature and for me, there is nothing like being in your own quiet oasis. When you have a chronic illness the feeling of choosing to be in your home isn't always there. You can end up with cabin fever, even if it takes months to build up. What do you … Continue reading Needing To Escape