What Do I Want For My Life?

Finding a sense of purpose amongst chronic illness can be a difficult task but when asks you what you want to do or work towards in life it can feel more than impossible. I live with M.E/CFS and every day can be so different it's hard to plan a week let alone my life long … Continue reading What Do I Want For My Life?

Ten Tips To Sleeping Better With ME/CFS

Sleep is so important but it becomes more vital when you have pain or a chronic illness to contend with. I am on the lesser known types of M.E/CFS because I rarely become insomniac. In fact, I probably oversleep and still wake up feeling like I have been awake the whole of the night before. … Continue reading Ten Tips To Sleeping Better With ME/CFS

Finding Me Within M.E

I used to love to cook, I loved to bake, I enjoyed swimming, I constantly fidgeted. I loved fashion and was dedicated to my school work. I sang and I loved movies. Nearly all of these are past tense now, I used to love to cook, I used to love to bake, I used to … Continue reading Finding Me Within M.E

Ugly Aides

I was lucky enough to have an Occupational Therapist visit my home and make adaptations to make my life easier. They had installed grabrails in all the bathrooms and the offer of more equipment than my house could withstand. The grab rails were drab but bright white so not too offensive. They were useful and … Continue reading Ugly Aides

10 Things In Ten Years With M.E That Made Me Happy

Well, my friends, it's a place we never really believe we ourselves will ever hit the time when you have been ill for years or in my case a decade. I spoke about all the things I learnt recently and I wanted to share the positive as well. I have had some major health struggles … Continue reading 10 Things In Ten Years With M.E That Made Me Happy

What I’ve Learnt From 10 Years OF M.E

I honestly don't want to scare anyone by writing this because people recover or experience M.E/CFS at their own pace. My story isn't a tale of doom for you all but also there is a part of me that's saying "YAY YOU DID IT!! How I don't know but YOU DID IT" So many times … Continue reading What I’ve Learnt From 10 Years OF M.E

What’s In My Handbag – Essentials

I'm always thinking about life in the style of "hope for the best, plan for the worst" and that means I like to have a few things in my handbag for when I'm out and about. I have M.E/CFS which makes going out a military manoeuvre in itself so there are some things I take … Continue reading What’s In My Handbag – Essentials

False Start City

I had great intentions for the start of this year. I was going to eat better, be more organised and try to fit in the adventures I wanted instead of them being an afterthought. Then my M.E truly kicked in. I was glad to eat anything that didn't make me feel sick, I wasn't moving … Continue reading False Start City

Making Changes In January

Settling into January after Christmas and New Year can be quite the process. There are the inevitable crashes and the picking up your life once again. I don't know about you but I have lots to get my head around and a lot to organise. Add in the ambitions of looking after oneself and wanting … Continue reading Making Changes In January

A Letter To The Other Half Of M.E

I was on Instagram and the lovely memyselfand_m.e shared an article from The Mighty. I was inspired after reading the article and wanted to pay homage to my Baloo and every other partner who deals with M.E on some level. Baloo and I are slightly different as both of us have M.E, it was how … Continue reading A Letter To The Other Half Of M.E