So here we are in week 3 for the UK having being told to stay home. I don't like the terminology around this time "lockdown" and "quarantine" sound so much more worrying than stay at home. I know some people find the vocabulary rather anxiety-inducing and find the general panic quite difficult to deal with. … Continue reading Staying Sane, Staying Home
Tips, Hacks & Advice
The Struggles of Travel That Only Spoonies Understand
As you know by now I'm away for my holiday and I was talking to my sister about some of the things I was packing and I was struck by how most people don't have to think about half that I have to think to pack. So I thought I would put a few of … Continue reading The Struggles of Travel That Only Spoonies Understand
Conscious Energy Conserving
This is the first blog of 2020! I hope your start of 2020 has been a good one. I took some time off to try and recover from the festive season. I always think the blog world hibernates a little the first two weeks of January so I thought it was a good time to … Continue reading Conscious Energy Conserving
Trying To Get Medical Help That Suits ME/CFS
This is a daunting blog post to write, it makes the situation that much more a reality. I bet your curiosity is piqued. So I have been with the same medical team since I transferred to adult services in the NHS at nineteen. There wasn't a clear path for me to progress from paediatrics so … Continue reading Trying To Get Medical Help That Suits ME/CFS
8 Things To Invest In If You Have A Chronic Illness
This is quite the different blog post for me as I am no expert on money, adulting or anything remotely like the title indicates. When you have a chronic illness your priorities do change and where you save money or you splurge reflects this. I want to share the areas in life I invest in, … Continue reading 8 Things To Invest In If You Have A Chronic Illness
What Do I Want For My Life?
Finding a sense of purpose amongst chronic illness can be a difficult task but when asks you what you want to do or work towards in life it can feel more than impossible. I live with M.E/CFS and every day can be so different it's hard to plan a week let alone my life long … Continue reading What Do I Want For My Life?