This is a daunting blog post to write, it makes the situation that much more a reality. I bet your curiosity is piqued. So I have been with the same medical team since I transferred to adult services in the NHS at nineteen. There wasn't a clear path for me to progress from paediatrics so … Continue reading Trying To Get Medical Help That Suits ME/CFS
This is quite the different blog post for me as I am no expert on money, adulting or anything remotely like the title indicates. When you have a chronic illness your priorities do change and where you save money or you splurge reflects this. I want to share the areas in life I invest in, … Continue reading 8 Things To Invest In If You Have A Chronic Illness
Finding a sense of purpose amongst chronic illness can be a difficult task but when asks you what you want to do or work towards in life it can feel more than impossible. I live with M.E/CFS and every day can be so different it's hard to plan a week let alone my life long … Continue reading What Do I Want For My Life?
Sleep is so important but it becomes more vital when you have pain or a chronic illness to contend with. I am on the lesser known types of M.E/CFS because I rarely become insomniac. In fact, I probably oversleep and still wake up feeling like I have been awake the whole of the night before. … Continue reading Ten Tips To Sleeping Better With ME/CFS
I used to love to cook, I loved to bake, I enjoyed swimming, I constantly fidgeted. I loved fashion and was dedicated to my school work. I sang and I loved movies. Nearly all of these are past tense now, I used to love to cook, I used to love to bake, I used to … Continue reading Finding Me Within M.E
I was lucky enough to have an Occupational Therapist visit my home and make adaptations to make my life easier. They had installed grabrails in all the bathrooms and the offer of more equipment than my house could withstand. The grab rails were drab but bright white so not too offensive. They were useful and … Continue reading Ugly Aides