Often I refer to having a hidden illness or an invisible one. To be fair, to some extent it is accurate, there aren't many signs of illness if you were to look at me. I have dark circles under my eyes and I am always pale, those are some of the more easily noticeable signs … Continue reading Is “Invisible” Illness Adding To The Issue?
I thought today I'd do a little life update. Baloo has now been living here for over three months which is crazy to think about. Last week the last of flat pack furniture was built for us - thank you all our family who helped. We are trying to find our feet and some sort … Continue reading Life Update – Love, IKEA, Wheelchairs and Me
I was lucky enough to have an Occupational Therapist visit my home and make adaptations to make my life easier. They had installed grabrails in all the bathrooms and the offer of more equipment than my house could withstand. The grab rails were drab but bright white so not too offensive. They were useful and … Continue reading Ugly Aides
I am a homebody by nature and for me, there is nothing like being in your own quiet oasis. When you have a chronic illness the feeling of choosing to be in your home isn't always there. You can end up with cabin fever, even if it takes months to build up. What do you … Continue reading Needing To Escape
"Don't forget, I'm just a girl, standing in front of a boy, asking him to love her." When I watched Notting Hill for the first time, the quote above didn't really impact me. It started to resonate when I got ill. I wanted to have that moment where I became just a girl looking for … Continue reading See Me Before M.E
Looking closer to home when you are dreaming from your bed of the far of lands David Attenburgh has described might be the most anti-climatic symbolism you could muster. Home can become your prison, as awful as it sounds. You know each of the four walls of a room intimately to the texture of the … Continue reading Starting Closer To Home