What Do I Want For My Life?

Finding a sense of purpose amongst chronic illness can be a difficult task but when asks you what you want to do or work towards in life it can feel more than impossible. I live with M.E/CFS and every day can be so different it's hard to plan a week let alone my life long … Continue reading What Do I Want For My Life?

Is “Invisible” Illness Adding To The Issue?

Often I refer to having a hidden illness or an invisible one. To be fair, to some extent it is accurate, there aren't many signs of illness if you were to look at me. I have dark circles under my eyes and I am always pale, those are some of the more easily noticeable signs … Continue reading Is “Invisible” Illness Adding To The Issue?

Life Update – Love, IKEA, Wheelchairs and Me

I thought today I'd do a little life update. Baloo has now been living here for over three months which is crazy to think about. Last week the last of flat pack furniture was built for us - thank you all family who helped. We are trying to find our feet and some sort of … Continue reading Life Update – Love, IKEA, Wheelchairs and Me

Ugly Aides

I was lucky enough to have an Occupational Therapist visit my home and make adaptations to make my life easier. They had installed grabrails in all the bathrooms and the offer of more equipment than my house could withstand. The grab rails were drab but bright white so not too offensive. They were useful and … Continue reading Ugly Aides

Needing To Escape

I am a homebody by nature and for me, there is nothing like being in your own quiet oasis. When you have a chronic illness the feeling of choosing to be in your home isn't always there. You can end up with cabin fever, even if it takes months to build up. What do you … Continue reading Needing To Escape

See Me Before M.E

"Don't forget, I'm just a girl, standing in front of a boy, asking him to love her." When I watched Notting Hill for the first time, the quote above didn't really impact me. It started to resonate when I got ill. I wanted to have that moment where I became just a girl looking for … Continue reading See Me Before M.E

Starting Closer To Home

Looking closer to home when you are dreaming from your bed of the far of lands David Attenburgh has described might be the most anti-climatic symbolism you could muster. Home can become your prison, as awful as it sounds. You know each of the four walls of a room intimately to the texture of the … Continue reading Starting Closer To Home

I Hated Exercise And Now I Miss It

If anyone has run when they are out of shape, you must know the physical sensations of that exertion. Your lungs feel on fire, you get a stitch in your side that stabs with every movement and breathing is an impossible task. Your legs are leaden and you feel every impact on the ground through … Continue reading I Hated Exercise And Now I Miss It

Stuck In The Middle With You

Hello! How is life? I feel like I have so much to catch up on and tell you about my holiday by the sea, in the sunshine. Like the life of M.E/CFS is, it was a mixed bag but a fabulous holiday with my family. I have so many pretty pictures to share and a … Continue reading Stuck In The Middle With You

13 Weird Things That Came With M.E/CFS

We talk a lot about symptoms etc when talking about chronic illness, rarely do we talk about the 'quirks' strange things that can happen since being ill. I thought of five straight away but found more as a typed so here are some of the weird things that came with ME. DISCLAIMER - I am … Continue reading 13 Weird Things That Came With M.E/CFS