Trying To Get Medical Help That Suits ME/CFS

This is a daunting blog post to write, it makes the situation that much more a reality. I bet your curiosity is piqued. So I have been with the same medical team since I transferred to adult services in the NHS at nineteen. There wasn't a clear path for me to progress from paediatrics so … Continue reading Trying To Get Medical Help That Suits ME/CFS

Christmas Pacing Starts Now… In November

For me it is November and I am already pacing for Christmas, you have to think rather ahead of time if you are ill and need to try and not relapse or have a flare of symptoms after Christmas. I am trying to sort out a few things between now and Christmas. So from now … Continue reading Christmas Pacing Starts Now… In November

The Life Of A Cat Lady With ME/CFS

Baloo is watching the Rugby World Cup with a snoring cat sprawled over his lap. I realised that I don't think I have ever talked about my cat Dibley. (Baloo is in real-time editing this blog post - it's annoying but he suggested the idea, okay?)     Dibley is technically my Mum's cat. She … Continue reading The Life Of A Cat Lady With ME/CFS

Why I’m Still Blogging About ME/CFS

Sometimes I don't know what to say on this blog anymore. It's been two years of blogging and sometimes I feel like I'm just starting to repeat myself. Baloo and I went through my statistics last night and I looked at all the countries people had read my blog from and the fact that I … Continue reading Why I’m Still Blogging About ME/CFS

And Then There Was One

I'm one of three siblings. I have always had someone up ahead and someone on trailing behind me. Ever since I was able to know I've had company- loud company. There were many a time that I craved some tranquillity and silence, that never was our family dynamic. It never was quiet, it was loud … Continue reading And Then There Was One

Why Change Can Be A Good Thing

Autumn seems to have snuck up on me a little. Our "summer" holiday didn't have to be in school holidays for the first time so we got back at the weekend and there are hoodies and socks out for the first time since summer. I don't like the cold but I like Autumn. The best … Continue reading Why Change Can Be A Good Thing