I have been trying to find the everyday things that spark joy for me or I appreciate more since lockdown. I've been pretty absent online just because I've been trying to strike some sort of balance in this new life we have. I have been reading a lot and trying to soak up the happy … Continue reading Life Lessons In Lockdown
My Experiences
Stay Home Update Week 4 (COVID-19)
What a week it has been, it has been a slight rollercoaster emotionally. I've been trying to balance my unquenching thirst to be productive and remembering my body has the energy of a sloth and ME/CFS likes to kick to remind you that you can't get it all done. Ha jokes curl up in a … Continue reading Stay Home Update Week 4 (COVID-19)
Staying Sane, Staying Home
So here we are in week 3 for the UK having being told to stay home. I don't like the terminology around this time "lockdown" and "quarantine" sound so much more worrying than stay at home. I know some people find the vocabulary rather anxiety-inducing and find the general panic quite difficult to deal with. … Continue reading Staying Sane, Staying Home
How I Survive Flying With A Chronic Illness
As you are all probably bored of hearing I recently went abroad on holiday. It meant two flights obviously and as someone who has navigated airports a few times, I would share my tips for preserving yourself and energy. I hope this gives you some reassurance that it can be possible to fly - even … Continue reading How I Survive Flying With A Chronic Illness
Flying For Some Sunshine
I know this is probably one of those blog posts that in the depths of winter you automatically hate. I am going on holiday where the sun appears and the weather is just a tad warmer than here in the glorious United Kingdom. Boo! I know, I can hear you all! I'm sorry for deserting … Continue reading Flying For Some Sunshine
Trying To Get Medical Help That Suits ME/CFS
This is a daunting blog post to write, it makes the situation that much more a reality. I bet your curiosity is piqued. So I have been with the same medical team since I transferred to adult services in the NHS at nineteen. There wasn't a clear path for me to progress from paediatrics so … Continue reading Trying To Get Medical Help That Suits ME/CFS