Hello lovely people, I am still on holiday right now and I wasn't planning to post this week. I thought I would talk about something that happened to me and I just want to say it's a sad interaction for me. I find it hard to talk about but it is so important because it … Continue reading Young, Ill And In A Wheelchair
I really should be packing instead of writing but I have not had the time nor the energy to write recently so I am taking what time I have to write this blog post. I am in Scotland now and I wanted to talk about my hopes of what we might get up to whilst … Continue reading Scotland Bucket List 2019
Finding a sense of purpose amongst chronic illness can be a difficult task but when asks you what you want to do or work towards in life it can feel more than impossible. I live with M.E/CFS and every day can be so different it's hard to plan a week let alone my life long … Continue reading What Do I Want For My Life?
There is a cafe in the city close to where I live that has a split seating area. There is a platform to see the view across the city which is three steps further. It shockingly has a mini lift to make it accessible (Whoo!!) but it's one of those loud whine type (boo) ones … Continue reading Pushing The Envelope
Often I refer to having a hidden illness or an invisible one. To be fair, to some extent it is accurate, there aren't many signs of illness if you were to look at me. I have dark circles under my eyes and I am always pale, those are some of the more easily noticeable signs … Continue reading Is “Invisible” Illness Adding To The Issue?
I thought today I'd do a little life update. Baloo has now been living here for over three months which is crazy to think about. Last week the last of flat pack furniture was built for us - thank you all family who helped. We are trying to find our feet and some sort of … Continue reading Life Update – Love, IKEA, Wheelchairs and Me
Sleep is so important but it becomes more vital when you have pain or a chronic illness to contend with. I am on the lesser known types of M.E/CFS because I rarely become insomniac. In fact, I probably oversleep and still wake up feeling like I have been awake the whole of the night before. … Continue reading Ten Tips To Sleeping Better With ME/CFS
I used to love to cook, I loved to bake, I enjoyed swimming, I constantly fidgeted. I loved fashion and was dedicated to my school work. I sang and I loved movies. Nearly all of these are past tense now, I used to love to cook, I used to love to bake, I used to … Continue reading Finding Me Within M.E
Accessibility is something that all people with disability aids or pushchair for that matter find navigating the world difficult. Stores and shops are some of the difficult places to go around and depending on the season it can be better or worse. I hate trying to squeeze around places and the width of the isles … Continue reading Access To The Outside World
I was lucky enough to have an Occupational Therapist visit my home and make adaptations to make my life easier. They had installed grabrails in all the bathrooms and the offer of more equipment than my house could withstand. The grab rails were drab but bright white so not too offensive. They were useful and … Continue reading Ugly Aides