Trying To Get Medical Help That Suits ME/CFS

This is a daunting blog post to write, it makes the situation that much more a reality. I bet your curiosity is piqued. So I have been with the same medical team since I transferred to adult services in the NHS at nineteen. There wasn't a clear path for me to progress from paediatrics so … Continue reading Trying To Get Medical Help That Suits ME/CFS

And Then There Was One

I'm one of three siblings. I have always had someone up ahead and someone on trailing behind me. Ever since I was able to know I've had company- loud company. There were many a time that I craved some tranquillity and silence, that never was our family dynamic. It never was quiet, it was loud … Continue reading And Then There Was One

Life Update – Love, IKEA, Wheelchairs and Me

I thought today I'd do a little life update. Baloo has now been living here for over three months which is crazy to think about. Last week the last of flat pack furniture was built for us - thank you all our family who helped. We are trying to find our feet and some sort … Continue reading Life Update – Love, IKEA, Wheelchairs and Me