Often I refer to having a hidden illness or an invisible one. To be fair, to some extent it is accurate, there aren't many signs of illness if you were to look at me. I have dark circles under my eyes and I am always pale, those are some of the more easily noticeable signs … Continue reading Is “Invisible” Illness Adding To The Issue?
I thought today I'd do a little life update. Baloo has now been living here for over three months which is crazy to think about. Last week the last of flat pack furniture was built for us - thank you all family who helped. We are trying to find our feet and some sort of … Continue reading Life, Love, IKEA, Wheelchairs and Me
Summer is by far my favourite season. I have my birthday to get childishly excited about, the ever-persistent optimism that we might have good weather in the UK and typically my family take a holiday somewhere in the UK. I love to absorb the smell of the ocean by the coast, I love to eat … Continue reading I Need Some Vitamin Sea 🌊👙
Sleep is so important but it becomes more vital when you have pain or a chronic illness to contend with. I am on the lesser known types of M.E/CFS because I rarely become insomniac. In fact, I probably oversleep and still wake up feeling like I have been awake the whole of the night before. … Continue reading Ten Tips To Sleeping Better With ME/CFS
Before we get into today's blog post I just want to say I mean no disrespect to anyone who genuinely tries to be supportive of someone with M.E/CFS, I also know a one-off comment can be a blow to someone that hurts and can stick in their minds. Sometimes no matter how open you are, … Continue reading What To Do When People Don’t Believe You
ME Awareness week felt like the right time to publish this, I have had written for nearly a year. I don't want to bring sadness to anyone but I also didn't want anyone feeling alone in the choices we have to make in life, like the big life choices that stick forever. Disclaimer, I just … Continue reading M.E Me and Baby?
Well, it's that time of year again and I'm excited for the content on social media and my gorgeous blog I have spent hours creating. It is from the 6th of May until the 12th with the 12th being the official M.E Awareness Day. I found last year really difficult to write about. I hope … Continue reading ME Awareness Week 2019
I used to love to cook, I loved to bake, I enjoyed swimming, I constantly fidgeted. I loved fashion and was dedicated to my school work. I sang and I loved movies. Nearly all of these are past tense now, I used to love to cook, I used to love to bake, I used to … Continue reading Finding Me Within M.E
Accessibility is something that all people with disability aids or pushchair for that matter find navigating the world difficult. Stores and shops are some of the difficult places to go around and depending on the season it can be better or worse. I hate trying to squeeze around places and the width of the isles … Continue reading Access To The Outside World
I was lucky enough to have an Occupational Therapist visit my home and make adaptations to make my life easier. They had installed grabrails in all the bathrooms and the offer of more equipment than my house could withstand. The grab rails were drab but bright white so not too offensive. They were useful and … Continue reading Ugly Aides