Trying To Get Medical Help That Suits ME/CFS

This is a daunting blog post to write, it makes the situation that much more a reality. I bet your curiosity is piqued. So I have been with the same medical team since I transferred to adult services in the NHS at nineteen. There wasn't a clear path for me to progress from paediatrics so … Continue reading Trying To Get Medical Help That Suits ME/CFS

Christmas Pacing Starts Now… In November

For me it is November and I am already pacing for Christmas, you have to think rather ahead of time if you are ill and need to try and not relapse or have a flare of symptoms after Christmas. I am trying to sort out a few things between now and Christmas. So from now … Continue reading Christmas Pacing Starts Now… In November

The Future Is My F Word

I am so excited for 2020 already. We have some holidays booked and Baloo has a big birthday quite soon into the New Year. There is a lot to look forward to and enjoy. I am enjoying the planning but at the same time, I am scared that I will alter our plans.   My … Continue reading The Future Is My F Word

The Life Of A Cat Lady With ME/CFS

Baloo is watching the Rugby World Cup with a snoring cat sprawled over his lap. I realised that I don't think I have ever talked about my cat Dibley. (Baloo is in real-time editing this blog post - it's annoying but he suggested the idea, okay?)     Dibley is technically my Mum's cat. She … Continue reading The Life Of A Cat Lady With ME/CFS

5 Things I live By With ME/CFS

Gosh, it's been a long time since I sat down to do one of these list-type blog posts. Also, I need to add that I'm so sorry there wasn't a blog post last week, something had to give and the blog lost the short straw. I just was running on low and I needed to … Continue reading 5 Things I live By With ME/CFS

Why I’m Still Blogging About ME/CFS

Sometimes I don't know what to say on this blog anymore. It's been two years of blogging and sometimes I feel like I'm just starting to repeat myself. Baloo and I went through my statistics last night and I looked at all the countries people had read my blog from and the fact that I … Continue reading Why I’m Still Blogging About ME/CFS