My Christmas Bucket List 2019

I did a blog post of this quite late in December last year and I'm trying to do it earlier so I give myself more time to get as many of these ticked off and to enjoy the Christmastime. I like to be organised so a rough outline of the things that matter to me … Continue reading My Christmas Bucket List 2019

Christmas Gift Guide 2019

It's that time of year once again when I spend too many hours going through gift ideas and this time I am including some people who have chronic illnesses and sell beautiful items that aren't "spoonie" related but just gorgeous. I always say that just because your loved one has a chronic illness it doesn't … Continue reading Christmas Gift Guide 2019

๐ŸŽ„Christmas 2019 ๐ŸŽ„

I'm sure there are many of you groaning at this blog post but I love to be organised so I thought I would put together a blog post with links to all my Christmas blog posts from the last few years that might be helpful. I am so excited for my new version of Blogmas … Continue reading ๐ŸŽ„Christmas 2019 ๐ŸŽ„

Trying To Get Medical Help That Suits ME/CFS

This is a daunting blog post to write, it makes the situation that much more a reality. I bet your curiosity is piqued. So I have been with the same medical team since I transferred to adult services in the NHS at nineteen. There wasn't a clear path for me to progress from paediatrics so … Continue reading Trying To Get Medical Help That Suits ME/CFS

Christmas Pacing Starts Now… In November

For me it is November and I am already pacing for Christmas, you have to think rather ahead of time if you are ill and need to try and not relapse or have a flare of symptoms after Christmas. I am trying to sort out a few things between now and Christmas. So from now … Continue reading Christmas Pacing Starts Now… In November

The Future Is My F Word

I am so excited for 2020 already. We have some holidays booked and Baloo has a big birthday quite soon into the New Year. There is a lot to look forward to and enjoy. I am enjoying the planning but at the same time, I am scared that I will alter our plans.   My … Continue reading The Future Is My F Word